International Day of Rare Diseases

International Day of Rare Diseases

International Day of Rare Diseases

February 29: International Day of Rare Diseases 2016

The King Baudouin Foundation joins the worldwide mobilization against rare diseases this February 29th.
The theme for this 9th day is “The voice of the patient – Together, let us hear the voices of patients suffering from rare diseases”.
The Foundation manages 55 philanthropic funds dedicated to scientific medical research, some of which are dedicated to rare diseases.
– In 2015, these funds allocated € 2.5 million to 42 researchers working on various pathologies, including rare diseases such as Epidermolysis Bullosa Simplex and Multi-System Atrophy (AMS).
– It also manages a Fund for Rare Diseases and Orphan Drugs which aims to improve the quality of life of patients and their loved ones.
Some key data:

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